I am in so much pain & it's making me so angry and frustrated. I'm angry because I've already missed 2 days of work, and I'm worried I will have to miss another one. I'm frustrated because there isn't anything I can do to stop my pain really. The only thing I can do is illegal, so there you have that. In case you are wondering, I smoke weed for my pain and it helps give me some relief. It helps with my nausea, helps me eat, helps me sleep and helps me relax a bit with these raging cramps. Though I haven't been able to sleep much today as it's been a really bad day, one of the worst in a long time.
I am starting this blog to help raise awareness among my friends and family and so people can have a better understanding what it's like for me to live with Endometriosis. I need people to be able to understand me, and my sisters who suffer with this devastating illness that is a daily battle. I suppose I should be clear too that I am waiting for a laparoscopic surgery in Oct for an official diagnosis, as this is the only way to diagnose the disease. I am however currently seeing Dr's and trying various forms of 'treatment'. I use this term loosely because the current treatment for Endometriosis is, in my opinion, very lacking. Which is why awareness and education is key. I would also like to add, I am no medical expert, I have no education in the medical field, I do however consider myself an expert on Endometriosis, at least my battle with it. I know my body and am very aware of my symptoms. I have been studying this disease for over a year now and I am forever reading and researching.
I will start out by saying that this disease is a motherfucker (I should also add that I won't be mincing my words, Mum), it is a constant battle with myself to keep going. Literally, physically, emotionally, you name it. It cause chronic fatigue, which is a result of chronic pain. You are constantly saving your energy for your life, and by life I mean your job, your family, your kids, your daily routine, whatever it is you do day to day. Check out the spoon theory: http://www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/
That pretty much sums up what it's like to live with this, it's an ongoing battle with one's self. It is my wish that people can start to become aware of this disease and begin to understand what the one in ten women with this go through. I'm not going to go into detail explaining what Endometriosis is right now, I'll provide some links at the end. I'm too tired to write all that out right now. I just wish I could get some relief, I know I could go to the hospital, but I'd rather suffer in the comfort of my own home than sit and suffer with strangers on the off chance that I might get a sympathetic Dr who will actually believe me when
I describe my pain. Another reason this disease is so isolating, you struggle to explain your pain and you feel like others struggle to believe you. It's very hard to live with.
This is it for now, I just need to start writing and putting it out there for people to see if they wish.
http://endometriosisnetwork.com/information/understanding-endometriosis/
http://www.endo-resolved.com/endometriosis_explained.html
http://www.theguardian.com/society/ng-interactive/2015/sep/27/the-pain-is-paralysing-30-women-describe-living-with-endometriosis
This last link is a great article with accounts of real women who suffer with Endometriosis.
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