Wednesday, 17 April 2019

It's back again

I'm in so much pain right now... I actually forgot how bad it could be. I'm going out of my mind trying to keep myself from going crazy. I'm having my period for the first time in a long while. I know it's only going to get worse before it gets better. It literally feels like someone is stabbing me in my sides. My life is already hard enough right now.. I don't want to get into it but it's been challenging to say the least. This is the last thing I need. I'm just trying to stay as strong as I can and take it moment by moment. Watching drag race for the 1000000th time. It keeps me sane and helps me forget the pain a little... I'm putting a link for a video an endo sister Jessica Le and her husband made showing, in my opinion, one of the best visual representations of what endometriosis truly feels like. The crazy thing is too is that it goes beyond just the pelvic area.. Right now I feel like I've been punched in the lower back, like someone fully squared off down there. Leg pain, chest pain, nausea, rectal pains... Yeah for real. I've been having those the past few days and nights. Not a pain I'm used too and it feels sharper than I remember. It feels like there is a weight pulling down my insides, in my pelvic area. It feels somethings trying to force it's way out of me. This disease is no joke. It can also develop on the lungs and this means that during your period you cough up blood clots. It can also develop on the brain and eyes I have heard... It can grow on the sciatic nerve as well, which I suspect I may have.

https://m.facebook.com/story.php?story_fbid=1497597473708978&id=100003762189674

On a positive note I have had a couple of women reach out to me recently to ask me about endometriosis regarding their own health and suspicions of having it. It makes me feel so amazing to be able to help in any way I can and try and steer them in the right direction to get the right kind of help. It took me years to figure out how to even begin to navigate this disease and how to go about getting proper help and advice. To be able to help anyone cut out some of the bullshit I had to go through is such an amazing feeling. I have always loved helping people and it's been a long time since I've felt that joy you get from just doing a small thing for someone else that will make a huge difference. Not to say that I don't help people.. It's just so rewarding when it comes to endometriosis because it's so personal to me and I'm so passionate about not wanting others to suffer like I and so many others have.

Another great moment for me recently is I had some of my writing on my experiences with endometriosis published in a book. It's called Fem Truth Endometriosis Edition a Collection of Stories From Courageous Women. I'll post a link. I'm so honoured to be a part of this, it makes me so proud. It's wonderful to know that our stories are getting out there. I've got to wrap this up and get back to drag race, I'm tired and it's late. I'm glad to write and publish something after so long... It feels good to get some things out.

https://www.amazon.com/FemTruth-Endometriosis-Collection-Stories-Courageous/dp/1798257521